Heart Patient Advocacy Group (PAG)
The MCRI Heart Flagship Patient Advocacy Group (PAG) is a key part of the Heart Flagship.
The Murdoch Children’s Research Institute (MCRI) Heart Flagship Patient Advocacy Group (PAG) is a committee that was formed in January 2021 to provide perspectives from the patient, family and Childhood Heart Disease (CHD) community on issues relevant to them.
The group consists of young people and adults with lived experience of childhood heart disease and heart failure, parents of patients, a Wadja Aboriginal Case Manager from The Royal Children's Hospital, the HeartKids State Manager for Victoria, and an MCRI researcher.
The PAG develops material that advocates for heart failure patients and their families, provides input on current research being undertaken at MCRI, as well as helping to communicate research to the wider CHD community.
MCRI Heart Flagship Patient Advocacy Group
Our patient story videos
These patient stories highlight the lifelong impact childhood heart disease and heart failure have on patients and their families.
Our team members
| Team member | Role |
|---|---|
| Dr Adam Piers | Co-Chair |
| Bec Peters | Co-Chair |
| Mia Cowley | Young adult representative |
| Lyndall Cowley | Parent representative |
| Annette Gaulton | The Royal Children's Hospital Wadja Aboriginal Case Manager |
| Tyler Airey | Adult patient representative |
| Matthew Orchard | Adult patient representative |
| Tracy Stanley | HeartKids Family Support Coordinator (Victoria/Tasmania) |
Patient Advocacy Group presentation
Every year our Patient Advocacy Group is given the opportunity to present to members of the MCRI Heart Flagship on issues that impact them.
Patient Advocacy Group member Mia Cowley presenting to the MCRI Heart Flagship
Patient Advocacy Group member Annette Gaulton presenting to the MCRI Heart Flagship